Ehlers Danlos Syndrome (EDS) awareness

This post has nothing to do with the usual subjects covered by this blog. It’s more personal than that. My niece Carrie and her two daughters have suffered, and continue to suffer, from a rare, painful and debilitating condition called Ehlers Danlos Syndrome (EDS). That suffering could have been reduced if there had been more knowledge of the condition among the medical profession. I’m somewhat cynical about “awareness campaigns”, but this is different. This awareness can have a major beneficial impact on real people, if the awareness is among the people who can make a difference: medical professionals. I’m asking …